Living With Sickle Cell: A Journey From Hospital Bed To Author

An image of sickle cell advocate Dominique FriendThe pressure of ordinary life is enough to cause you to lose your mind, so what causes a person living with a life-threatening blood disorder to take on a huge endeavor like becoming an author and activist for a disease?

To complicate things even more the disease is an invisible one, meaning the damage the disease causes is rarely reflected in the outward appearance.

LIKE on Facebook! Get Your Daily Medicine…For LIFE!
[ione_facebook_like_box height=”260″]

My name is Dominique Friend, and I’m 43 years old living with Sickle Cell Disease.  My life has truly been interrupted as a result of this dreadful disease. The chief complaint of Sickle Cell is pain. Because of the severe pain, it’s hard for me to function as a normal person.

The pain affects my ability to do simple things like cook dinner on a regular basis or attend football games with my son or other family activities, because I tire easily. I have trouble standing for long periods of time. Every day is a challenge to keep up with my life’s activities. Basic simple activities like going shopping with my daughter or doing a load of laundry can be so draining for me.

I’m sure you all can’t imagine living a life in pain every single day. Consequently, there is a lack of awareness of how severely the disease affects those with SCD and a lack of understanding of the excruciating pain that accompanies a crisis and the overall fatigue and weakness that are the continual companion of those with SCD. Unfortunately, this lack of awareness can extend to health care practitioners as well.