Resilience Beyond My Understanding
(BlackDoctor.org) – Rae Lewis-Thornton. The Diva who is still with us, and still living with AIDS. Another World AIDS Day is upon us, without a cure, and without a decrease in the staggering number of people in the Black community who have to deal with HIV, Rae continues to deliver her honest message of strength and knowledge.
I’m never really sure how much I can take. Lately, each time I say I can’t take not another thing, another thing happens. And then I discover that I’m resilient beyond my own understanding. That’s how I know that the resilience I have is sealed in a covenant with God. I might not understand how I do it, but I understand why. As Grandmamma would say, “Ain’t nobody but God.” If I had to do this thang myself, this Tuesday they would have had to lock me up on the sixth floor ward of somebody’s hospital, and that’s for real.
These last three months have felt like old school AIDS. The thing that makes this disease one bad ass motherfucker, and the wildest thing about it all is that none of this should be happening. Honestly. My viral load is non-detectable and my t-cell count is relaxing in the high 400‘s. So why is my immune system acting like my t-cell is 8? That’s the thing that makes this disease complicated. Nothing is as simple as it seems. It is also the thing that challenges the very core of who you are.
Y’all know the details. I’ve been blogging about it and it reads like a scene out of reality TV. It started with food poisoning, nausea, food sensitivity, diarrhea and rapid weight lost. My body was so toxic I couldn’t tolerate my HIV medications. I had to take a drug holiday and risk drug resistance to my HIV medication to get better. Then after the month long holiday, it didn’t solve the problem. I then had to have an endoscopy and four stomach biopsies. From that they discovered that I had a bacteria infection in my stomach. In the mean time, I got another AIDS related infection that required me to take IV medication, but there was a national shortage of the medication that I needed so they had to put me on an alternative anti-viral medication that causes renal failure. In fact, that particular medication is so old school, my doctor hasn’t even prescribed it in over ten years.
So this journey of treatment began four weeks ago. The IV medication was a five hour treatment once a week. The day of the treatment I also had to take 8 pills of another medication to protect my kidneys. Together they worked almost like chemo. The day of and the day after the treatment I was so weak that I could barely hold my body up. And then as the week went on I got better, but by the time I got better it was time to have another IV infusion of the anti-viral medication. Then two weeks into the treatment of this infection, I started treatment for the bacteria infection. It was five medications at 11 pills a day, on top of my 15 HIV pills a day. I had reached a whooping twelve different medications, 31 pills a day and on Tuesdays 39 pills a day and a five hour IV infusion. I was on overload to say the least. This is the stuff old school AIDS was made out of. Back to back infections combined with treatment and more treatment. It is a burden to bear but you stuck it out because the alternative could mean death. So I drew on what I knew, I recalled my strength from within and I did it with as much grace as I possibility could. ??