What Is Sickle Cell Sabbath?

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Sickle Cell Sabbath, on September 16, 2012, brings together faith-based and neighborhood partnerships in Baptist churches around the United States to increase awareness about sickle cell disease and the importance of blood and bone marrow donations.  At some churches, local community-based organizations will also be onsite to educate and provide sickle cell trait screening.

Help improve the lives of people and families affected by sickle cell disease through education, early detection, and intervention!

By Dr. Althea Grant, BDO Sickle Cell Expert

Althea Grant, PhD, is Chief of the Epidemiology and Surveillance Branch in the Division of Blood Disorders of the National Center on Birth Defects and Developmental Disabilities. Dr. Grant has specifically been recognized for her contribution to developing public health programs and resources for sickle cell disease and sickle cell trait.

HIV Couples: When They’ve Got It, But You Don’t

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HIV isn’t the first topic that comes up when most couples start dating. You may not know the HIV status of your partner. You might not even have been tested yourself.

It can be very difficult to talk about HIV status, but it’s very important for couples to discuss this, not only for health, but to achieve a greater degree of trust and intimacy in the relationship.

So what are the most important facts that couples need to know?

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Couples with one person who is HIV-positive and one who is HIV-negative are sometimes called “serodiscordant” or “mixed serostatus”. “Sero-” refers to blood serum.

“Serostatus” refers to whether someone has HIV infection or not.

What Are the Special Issues for Mixed Couples?

People in mixed-status relationships face all the same things as other couples. But there are some extra issues:

• The HIV-positive partner might focus on not infecting their partner. The HIV-negative partner may concentrate on taking care of the other person. This can cause a serious lack of balance in the relationship.

• HIV can cause changes in the body. Anti-HIV medications may have unpleasant side effects. This might give the HIV-positive partner negative feelings about their body and their health. It may be difficult to feel attractive and have a normal romantic relationship.

• Fear of transmitting HIV can cause an excess of caution. This might even stop all sexual activity.

• Try to have open discussions about your desires, your fears, and your limits. Agree on ways of sexual expression that fit with the level of risk you are comfortable with. Talking to a sexual or relationship counselor can help.

Reducing the Risks

Antiviral medications (antiretrovial therapy or ART) control HIV infection very well.

The good news about taking ART is how well it works. There is no cure for AIDS and ART won’t get rid of HIV infection, but it can help you live a full, healthy life.

ART can also make it very unlikely that you will pass HIV infection to your partner. If you maintain an undetectable viral load, chances are good that you won’t pass your HIV infection to your partner. However, there are several important things to remember:

• You have to take ART very regularly for it to work. Fact Sheet 405 has more information on adherence to treatment.

• An “undetectable” viral load does not mean zero. It means there is not enough HIV in your blood sample to show up on the test.

• The viral load test measures virus in the blood. It doesn’t tell you about virus in sexual fluids (sperm or vaginal fluids.)

• The viral load test result was for when your sample was taken, not today. Viral load can change quickly, especially if you get sick with a cold or flu, or even if you get vaccinated.

Even with all these warnings, it is very rare for someone who is taking ART and has an undetectable viral load to infect a partner.

Using a Condom

It is rare for a partner with an undetectable viral load to transmit HIV. However, it still makes sense to take extra steps such as using a condom.

Condoms are very effective at preventing the spread of HIV. They must be used correctly, every time you have sex. If you can get used to using condoms, you can relax and enjoy yourselves more during sexual activity.

Other Ways to Reduce Risk

• Risk is lower if the infected partner is taking antiretroviral medications.

• If so, take every scheduled dose of medications.

• Avoid sexual activity during any infection: a sexually transmitted disease, or even a cold or flu.

• Avoid sexual activity within a couple of weeks after getting any vaccinations.

If You Are Exposed to HIV …

If a condom breaks, or if you forget to use one, anti-HIV medications might prevent transmission. Talk to your doctor about PEP, “Post-Exposure Prophylaxis.” This has not yet been proven to avoid transmission between sex partners. Do not just take a few doses of your partner’s medication! That might not be the right treatment. For PEP to work, it must be started very soon after exposure to HIV. Discuss PEP with your doctor in advance so that you know what your options will be in case something happens that exposes the negative partner to HIV.

Having Children If The Man Has HIV

Recent studies show that it is possible to “wash” the sperm of an HIV-infected man so that it can be used to fertilize a woman and produce a healthy baby. These procedures are effective, but very expensive. A recent cost estimate was about $10,000, and medical insurance will probably not cover the cost. It can be very difficult to find a place to have sperm washing done.

Having Children If The Woman Has HIV

Without treatment, up to 35% of pregnant women with HIV can pass the infection to their newborns. With proper treatment, the risk of passing HIV to newborns drops to 2%.

Artificial insemination, a simple procedure, places the man’s sperm into the woman’s vagina. This allows pregnancy without exposing the man to HIV.

If a woman with HIV becomes pregnant, she should be very careful to stay healthy during pregnancy. Be sure to discuss pregnancy with your health care provider, preferably before becoming pregnant. Your provider will help you with the treatment you need to reduce the chance your baby will be infected. Also, avoid breastfeeding a newborn. This can transmit HIV.