Black People Thriving With HIV: Stigma Is Loud, But So Is Survival

Black Excellence Includes Us

When we talk about Black excellence, too often we leave out a crucial truth: Black people living and thriving with HIV are part of that excellence. Period.

We are authors, activists, parents, healers, artists, preachers, and professionals. We are not statistics—we are survivors. We are not invisible—we are essential. And despite the silence that stigma often brings, the joy and power of Black people living with HIV are loud when you know where to look.

As of 2023, over 40 percent of people living with HIV in the U.S. are Black, despite making up just 13 percent of the population. That’s not because we’re reckless—it’s because we’ve been historically denied access to healthcare, targeted by discriminatory public health systems, and burdened by systemic racism in everything from housing to criminal justice.

But here’s what you don’t hear enough: Black people with HIV are living long, full, vibrant lives.

Centering Black HIV Advocates, Influencers & Everyday Warriors

There are powerful voices in our community redefining what it means to live with HIV—people who are shifting the narrative from shame to strength.

Let’s shine a light on a few:

Deondre Moore – A public health advocate and GLAAD spokesperson who shares his story to end stigma and promote testing among Black youth.
Gina Brown – A long-time HIV activist who focuses on centering the experiences of Black women in the movement.
Marvelyn Brown – Author of The Naked Truth: Young, Beautiful, and (HIV) Positive, who travels the world educating about HIV as a young Black woman.
Guy Anthony – Founder of Black, Gifted & Whole Foundation and an advocate for mental health and HIV awareness in queer Black spaces.

These folks remind us that Black HIV advocacy isn’t just medical—it’s personal, political, and deeply rooted in liberation.

And just as important are the everyday warriors: the uncle on meds who never misses a family BBQ, the sister living her truth with joy and confidence, the church elder who gets tested every year and urges others to do the same. Their stories are part of the fabric of Black resilience.

Busting Myths and Celebrating Survival

There’s still way too much misinformation out there—so let’s clear the air:

Myth: HIV is a death sentence.
Truth: With treatment, HIV is manageable. Many people live normal life spans with undetectable viral loads.

Myth: You can “look” HIV-positive.
Truth: HIV has no look. The healthiest, flyest, strongest people you know could be living with HIV.

Myth: You can’t have relationships or children if you’re HIV-positive.
Truth: You can have healthy relationships, fulfilling sex lives, and children who are HIV-negative with the right medical support.

Myth: You’re “dirty” or “reckless” if you get HIV.
Truth: Shame and stigma are more dangerous than the virus. HIV can affect anyone—and judgment helps no one.

Mental Health, Medication, and Movement: Holistic Living With HIV

Living well with HIV is about more than just popping a pill—it’s about whole-self healing: mind, body, and spirit.

1. Mental Health Matters

The weight of stigma, fear, and medical trauma can be heavy. Black people living with HIV often carry layers of internalized shame, especially if they grew up in religious or conservative spaces. Therapy (especially with a culturally competent provider), peer support groups, journaling, and mindfulness practices can be powerful tools for reclaiming peace of mind.

2. Medication is Liberation

Today’s HIV meds are powerful, accessible (though the system still needs work), and can help people reach “undetectable” status—meaning the virus can’t be transmitted sexually. That’s U=U: Undetectable = Untransmittable.

Staying on your meds is an act of self-love. It’s an act of resistance. And for some, it’s also about helping others see what’s possible.

3. Move Your Body, Nourish Your Soul

Regular physical movement improves immune function, mental health, and energy. That doesn’t have to mean the gym—it can mean dancing, walking, gardening, or yoga. Eating well, staying hydrated, and getting rest are all part of the formula too.

It’s also about finding joy. Laughter. Music. Purpose. Because joy is medicine, too.

Spiritual Wellness and Ancestral Strength

Many Black folks connect health and healing to faith, spirit, and ancestors. Living with HIV can challenge relationships and deepen them.

For some, the church was a source of shame. For others, it’s where they find comfort. Either way, the healing journey often includes reclaiming spirituality on your own terms. That might mean:

Speaking affirmations over your body
Reconnecting with African spiritual traditions
Creating sacred spaces for prayer, meditation, or reflection
Honoring ancestors who knew survival, even in the face of sickness and silence

You are not alone. You come from people who refused to die quietly. That strength lives in you.

Community Resources That Get Us

One of the most powerful ways to thrive is by plugging into the community. And that means spaces that see you, love you, and advocate for your whole self—Blackness and all.

Organizations Doing the Work:

The Black AIDS Institute – The nation’s only HIV/AIDS think tank focused exclusively on Black people.
Positive Women’s Network – USA – Led by women living with HIV, focused on leadership and advocacy.
THRIVE SS – Atlanta-based group for Black gay men living with HIV, built on brotherhood, healing, and empowerment.
The Well Project – Resources for women living with HIV, with a focus on education and empowerment.
SistaLove – Advocating for Black women and girls in the HIV movement with love, community care, and justice.

You deserve care that doesn’t judge you. Clinics that don’t shame you. Providers that listen. And a community that uplifts you—because you’re worthy, regardless of your status.

How to Plug In & Be Part of the Healing

Whether you’re HIV-positive or not, you have a role in ending stigma and building a culture of care. Here’s how you can show up:

Get Tested Regularly – Knowing your status is self-care and community care.
Talk About It Openly – Normalize conversations about testing, treatment, and thriving.
Support People Living with HIV – Listen without judgment. Affirm their humanity. Learn from their stories.
Advocate for Better Healthcare Access – Demand that Black communities get equitable, stigma-free medical support.
Celebrate Survival – Throw flowers to the living. Let people know their lives matter—not in spite of HIV, but because of their light, wisdom, and brilliance.

You’re Still Here—and That’s Powerful

Black people have survived the worst—enslavement, colonization, medical neglect, and so much more. HIV does not erase our worth. It doesn’t cancel our beauty, our purpose, or our future.

Stigma may be loud. But so is love. So is truth. So is Black survival.

Let’s honor the lives of those we’ve lost—and uplift the ones who are still here, shining and thriving every day.