My endometriosis journey has reached a turning point and finally, I found a doctor who cares about my wellbeing and understands that I have been struggling for a long time. From all the different kinds of birth controls, multiple ER visits, an IUD that became stuck and had to be removed via surgery, to a pain management system as long as a ruler on my dresser, I have officially found a doctor who understands my situation and has offered a solution.
She went through my file and understood that I have been on many medications and forms of hormones for years and that I was doing okay on Orilissa.
Unfortunately, Orilissa is not a medication that can be taken for an extended period of time because it increases your chances of developing Osteoporosis.
As far as Orilissa, overall it has been okay. I did have a period last month (June) and it was pretty bad, as I ended up going to the ER and was discharged with the same explanations.
I did notice that every time I end up in the ER, one of my vitamin levels is very low. For me in particular, my magnesium is very low when I am on my period, to the point where I have had a transfusion in the ER once.
Make sure to see what you could be low on, and start taking vitamins to boost those levels, and if they’re really low you might want a transfusion.
Another thing I noticed on the Orilissa is the continued pain I feel while I’m going to the bathroom. There’s a very sharp and intense pain, and it happens very often.
Sometimes throughout the day, I feel sharp pains, but I usually do not take medication for it because it goes away quickly. I will say that it has taken away a lot of my pain,