generations that Sickle Cell patients are drug-seeking and that they are drugs really prevents them from receiving the best care possible.
I would say to doctors, nurses, health care providers within the emergency room setting that they need to learn their patients to as individuals and not as a statistic. And many providers treat their patients just to get them out of the door in the emergency room setting. But if they learned who they were and took the time to understand what brought them there that they’ll be able to provide them with the best quality care as possible.
Clinical trials is another passion that I have. I believe that the minority population and as we talk about black men with Sickle Cell disease are not participating in clinical trials and if we want to have culturally appropriate disease-modifying drugs to help treat our disease we have to have the people that suffer from the disease to participate.
So I would admonish anybody that’s watching if you’re a patient even if you’re a provider to either participate more or get more information from your provider and if your provider tried to make sure you reach out to a more diverse population and try to make sure you reach out to more males.
Yes, I believe that researchers should make sure that they reach out to their black male patients. We don’t see that many black male patients from a research standpoint we are looking for different disease-modifying drugs. And also we