Uterine fibroids are one of the most common reproductive conditions affecting those with uteruses. Millions suffer from uterine fibroids, however, the diagnosis can feel isolating. Finding community and social support offers a place for you to foster relationships with those going through similar experiences.
The White Dress Project: The White Dress Project began as a global movement for awareness and advocacy for those who suffer from uterine fibroids. The name stems from the fear that comes with wearing white dresses (or clothing) with uterine fibroids.
The name represents a reclaiming of life and commitment to finding a cure. The White Dress Project encourages storytelling and courageous honesty to find community in this disease. While the non-profit organization relies heavily on healthcare practitioners and clinical research, they also strongly promote the use of community-building as a form of healing.
This particular organization represents all those who suffer from uterine fibroids, it also focuses on the experience of Black women since they are overrepresented in diagnosis. On their website, you can find personal stories, educational materials, and ways to get involved.
Through empowerment, education, and advocacy, The White Dress Project aims to reclaim strength and dignity for those suffering from fibroids.
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CARE About Fibroids: CARE About Fibroids is a non-profit organization focused on centering uterine fibroids as a women’s health issue and promoting greater awareness and action. Although uterine fibroids will affect 80% of women by the time they turn 50, the spectrum of care and information is inadequate when compared to the frequency.
CARE About Fibroids is focused on claiming uterine fibroids as a common condition. With this objective, they hope to increase awareness and education in hopes of earlier detection. Advocacy is one arm of CARE, but another arm is community!
They hope to assemble a strong circle of patients, loved ones, healthcare practitioners, and policymakers to represent the full picture of those who suffer with uterine fibroids.