…centers and hospitals specialize in sickle cell disease treatment and support. If your local community doesn’t offer this option, look for a doctor and a pain treatment specialist who have experience in treating sickle cell disorders. Choose a doctor you are comfortable with and with whom you can partner over the long term. Be sure you feel comfortable asking questions, sharing your insights, and feel like you and the doctor are part of a team.
The following types of health professionals can diagnose and help treat symptoms of sickle cell disease. Some of these health professionals may provide specialized treatment or counseling.
• Hematologist (blood or tissue specialist)
• Family medicine physician
• General practitioner
• Pediatrician (specializes in the care of infants, children, and adolescents)
• Pain management specialist
• Pediatric hematologist-oncologist (specializes in blood disorders and cancers among children and teens)
• Pulmonologist (lung specialist)
• Neurologist (brain and nervous system specialist)
• Ophthalmologist (eye specialist)
• General surgeon
• Medical geneticist (specializes in conditions caused by abnormalities in genes or chromosomes)
Dealing with sickle cell disease can be challenging, but with so many innovative medical treatments available, it is possible to live a long and rich life. Become a partner in your care team to have the healthiest and longest possible life.
To find medical centers and hospitals that specialize in sickle cell disease treatment and services http://www.cdc.gov/ncbddd/sicklecell/documents/SickleCellDIRECTORY_508.pdf
For tips on when to seek emergency care or call your doctor http://www.cdc.gov/ncbddd/sicklecell/documents/tipsheets_guide.pdf
Keep track of your important health information in order to share it with your doctor
Watchful Waiting
Watchful waiting is when you and your doctor watch your symptoms to see if your health improves on its own. If it does, no treatment is necessary. If your symptoms don’t get better or get worse, then it’s time to take the next treatment step. Some complications of sickle cell disease may not need immediate medical attention from a doctor. In these cases, you can try home treatment.
• Medicine. Painful events can be treated at home depending on how severe the pain is and how long you’ve had it. Try over-the-counter pain medicine for mild pain. Or take a stronger medicine, if prescribed by your doctor. If this doesn’t work, contact your doctor or seek emergency medical treatment.
• Fluids. You may treat persistent, painful erection of the penis (priapism) at home by drinking fluids, taking over-the-counter pain medicine, and urinating as much as possible. If this doesn’t solve the problem within 2 to 3 hours, seek emergency medical treatment.
Which Doctors Can Provide The Best Help?
If you or your child has sickle cell disease, try to find a doctor who has special training for this disease. Some medical centers and hospitals specialize in sickle cell disease treatment and support. If your local community doesn’t offer this option, look for a doctor and a pain treatment specialist who have experience in treating sickle cell disorders. Choose a doctor you are comfortable with and can partner with over the long term.
The following types of health professionals can diagnose and help treat symptoms of sickle cell disease. Some of these health professionals may provide specialized treatment or counseling.
• Hematologist
• Family medicine physician
• General practitioner
• Pediatrician
• Pain management specialist
• Pediatric hematologist-oncologist
• Pulmonologist
• Neurologist
• Ophthalmologist
• General surgeon
• Medical geneticist
Yes, dealing with sickle cell disease can be challenging, but with so many innovative medical treatments available, it is very possible to live a long and rich life by partnering with your doctor.
By Dr. Althea Grant, BDO Sickle Cell Expert