Ashley Valentine, MRes, Co-Founder and President of Sick Cells, updates us on policy and explains why it’s important to advocate for your health as a sickle cell patient and how to go about it.
Sickle Cell Warriors: Advocate For YOUR Health With These Tips (Video)
The Latest In Sickle Cell Disease
Living with Sickle Cell Disease: Your guide for the COVID-19 Vaccine
As new information surfaces regarding COVID-19 and the COVID-19 Vaccine, many with chronic disease, such as sickle cell disease, question whether or not it is safe for them to get vaccinated. How will my immune system react to it? Is read more about Living with Sickle Cell Disease: Your guide for the COVID-19 Vaccine
Three Ways To Be A Strong Advocate For You And Your Family
As a result, patients owe the prior generation of patients and caregivers who have invested countless hours in the difficult and ongoing work of advocating for better care. Their work has fought for increases in Federal funding that has improved read more about Three Ways To Be A Strong Advocate For You And Your Family
Recognizing the Depression and Anxiety Challenges of the Holiday Season
As a sickle cell patient, the typically joyous holiday season can, at times, be mired in the fear of shorter, darker, and colder days. The frigid temperatures mixed with holiday expectations and the emotional ghosts of lost loves, loved ones read more about Recognizing the Depression and Anxiety Challenges of the Holiday Season
Dating, Relationships and Sickle Cell Disease
As a young man born with Sickle Cell Disease (SCD), growing up in post-sexual revolution America, I felt compelled to quickly experience as much normalcy, connection, and pleasurable experiences as possible. Because, prior to the information age, little was known read more about Dating, Relationships and Sickle Cell Disease
Embracing The New Normal With Sickle Cell Disease
Sickle Cell Disease (SCD) is a group of inherited red blood cell disorders that affects hemoglobin, the protein that carries oxygen through the body. Normally, red blood cells are circular and flexible to move easily through the blood vessels. If read more about Embracing The New Normal With Sickle Cell Disease
Sickle Cell Disease In The ER: Confronting Barriers To Care
“You’re too pretty to have a disease,” declared the nurse in the emergency department (ED) dismissing Constance Benson’s reports of unbearable pain, a byproduct of her sickle cell disease (SCD). Constance, who is in her late twenties, is a professional read more about Sickle Cell Disease In The ER: Confronting Barriers To Care