Bernie Williams, a former Major League Baseball star turned advocate, has made a lasting impact on the lives of many through his work in ... Read More
Rare Disease
A Dermatologist Offers Tips On Recognizing the Mpox Rash
Anyone who gets a new, unexplained skin rash should call their doctor and get medical care in case it's Mpox (formerly monkeypox), public ... Read More
Why Clinical Trials Matter As a Black Woman With Myasthenia Gravis: “I Paved The Way For The Next Person”
Clinical trials are crucial for advancing medical research and developing new treatments for diseases. However, Black Americans have ... Read More
I’ve Had 18 Surgeries, But I’m Still Standing Strong: ‘Faith Is My Anchor’
Antwan Winkfield’s earliest memories are shrouded in the stories his family told him. As a baby, he was often inconsolable, and his mother ... Read More
This Sarcoma Clinical Trial Reduces Risk of Relapse by 43%
A glimmer of hope emerged for patients with sarcoma in a recent clinical trial. Researchers funded by Stand Up To Cancer (SU2C) achieved a ... Read More
I’m 27 With Stage 4 Cancer. Here’s Why I Advocate for Clinical Trials
If you had told me a few years ago that I'd be battling stage 4 cancer as a young Black woman in my 20s, I never would have believed you. ... Read More
Sarcoidosis Affects Black Americans More Than Others. Clinical Trials Can Change That.
The Foundation for Sarcoidosis Research (FSR) has launched the Coalition for Clinical Trial Equity to tackle health disparities related to ... Read More
I Have a Rare Disease. Here’s Why I Chose to Do a Clinical Trial as a Black Woman
My name is Tasha White, and I was diagnosed with myasthenia gravis at the young age of six years old. Myasthenia gravis, or MG for short, is ... Read More
9 Things You Need For the Ultimate Pompe-Friendly Diet
Living with Pompe disease doesn't mean sacrificing flavor or nutrition. In fact, paying closer attention to your diet can help manage ... Read More
Managing Pompe Disease in Black Children: 10 Tips for Parents
In the United States, about 1 in 40,000 people have Pompe disease, but it is much more common among Black Americans, according to Michigan ... Read More
Tips for Monitoring Late-Onset Pompe Disease
Monitoring your health is essential for effectively managing late-onset Pompe disease. By paying attention to changes in your physical ... Read More
Pompe Disease: Symptoms, Causes & Treatments
Living with Pompe disease can be challenging, particularly for Black individuals who may face unique experiences and challenges. However, ... Read More
