My endometriosis journey has reached a turning point and finally, I found a doctor who cares about my wellbeing and understands that I have been struggling for a long time. From all the different kinds of birth controls, multiple ER visits, an IUD that became stuck and had to be removed via surgery, to a pain management system as long as a ruler on my dresser, I have officially found a doctor who understands my situation and has offered a solution.
She went through my file and understood that I have been on many medications and forms of hormones for years and that I was doing okay on Orilissa.
Unfortunately, Orilissa is not a medication that can be taken for an extended period of time because it increases your chances of developing Osteoporosis.
As far as Orilissa, overall it has been okay. I did have a period last month (June) and it was pretty bad, as I ended up going to the ER and was discharged with the same explanations.
I did notice that every time I end up in the ER, one of my vitamin levels is very low. For me in particular, my magnesium is very low when I am on my period, to the point where I have had a transfusion in the ER once.
Make sure to see what you could be low on, and start taking vitamins to boost those levels, and if they’re really low you might want a transfusion.
Another thing I noticed on the Orilissa is the continued pain I feel while I’m going to the bathroom. There’s a very sharp and intense pain, and it happens very often.
Sometimes throughout the day, I feel sharp pains, but I usually do not take medication for it because it goes away quickly. I will say that it has taken away a lot of my pain,
so I do still recommend it.
I am currently in my third month, and soon I will have to stop the medication, especially since I already have bone defects. I am currently on strong calcium/vitamin D vitamins to rebuild my bone density and keep me strong.
The next step has been a long time coming – surgery. I will be having a laparoscopy which will allow my doctor to see the tissue that is causing the problem and remove it in a non-invasive way. This is a minimally invasive, outpatient procedure that will allow her to clean out the gunk in the different areas in my body and improve one of the main symptoms of endometriosis, which is pain.
When my doctor recommended surgery, I was through the roof. Many doctors are not comfortable with the idea of operating on a woman’s reproductive system because they do not want to decrease your chances of having children.
Fortunately, my doctor understands that but still believes that surgery will give me years of relief.
The scheduler will be calling me soon, and I would like to have it during the cold months and maybe during a school break since I work in higher education.
I will update you all as I recover, and will let you know how it goes.
Wish me luck!