Robby Novak suffers from osteogenesis imperfecta, a disease that makes his bones brittle. But the smiling Youtube sensation doesn’t let his frequent injuries slow him down.
In fact, Robby has had more than 75 broken bones and 18 surgeries! He has steel rods in both legs.
Osteogenesis imperfecta is a lifelong, chronic condition and affects between 25,000 and 50,000 adults and children in the United States. It’s characterized by a lack of normal collagen needed to form strong bones. The result is frequent bone fractures, sometimes for no apparent reason. There are different degrees of OI, ranging from a neonatal type, often fatal, to a very mild type that can be under-diagnosed.
Despite his condition, he keeps a great, upbeat attitude.
Robby and his sister Lexi, who also has brittle bone disease, were adopted by Lori and David Novak. Laurie and David have been caring for the siblings since Lexi was 17 months old and Robby was 2 months old. They also raised three biological children, now grown. They have never held Lexi or Robby back from doing what they love and experiencing life.
“We let our kids be kids,” said Laurie Novak. “Even though it’s scary, we try not to be overprotective. They can’t become well-rounded if they are right next to you all the time. Let them be as independent and as typical kids as possible. We try not to say ‘no.’”
Even when his bones were broken, Robby’s positive attitude and energy were so infectious, his brother-in-law decided to put him on video and the rest is history…