We had an AMAZING time in Miami learning more about living well with Sickle Cell from this group of men! Check out the highlight reel below and catch the full conversation here
Men Living Well With Sickle Cell (Miami Edition)
The Latest In Living With Sickle Cell Disease
Faith Over Fear: How an Infant’s Family Treated Her Sickle Cell Disease
As a newborn, Savannah Spio was diagnosed with sickle cell disease, a condition that requires lifelong care. Her parents, Lillian and Justin, sought out treatment for Savannah at Cedars-Sinai. In her first few weeks of motherhood, Lillian Spio received disturbing read more about Faith Over Fear: How an Infant’s Family Treated Her Sickle Cell Disease
I Tried Gene Therapy—and Haven’t Needed a Blood Transfusion Since!
Sickle cell disease (SCD) has long been a significant health challenge in the Black American community, disproportionately affecting individuals of African descent. This inherited blood disorder alters the shape of red blood cells, leading to painful episodes, organ damage, and read more about I Tried Gene Therapy—and Haven’t Needed a Blood Transfusion Since!
The Unbreakable Bond of Two Siblings Living with Sickle Cell
Growing up with sickle cell disease (SCD) means navigating a complex journey marked by resilience. As children with SCD mature, they face new physical and emotional challenges, including the increasing complications of the disease and the significant shift in their read more about The Unbreakable Bond of Two Siblings Living with Sickle Cell
Sickle Cell Gene Therapy Clinical Trials: What Black People Should Know
Sickle cell disease is a group of inherited blood disorders that impact the hemoglobin and cause red blood cells to form a sickle shape. This shape makes it difficult for cells to carry oxygen properly. The “sickling” prevents oxygen from read more about Sickle Cell Gene Therapy Clinical Trials: What Black People Should Know
Why I Chose to Do an Experimental Trial to Potentially Cure My Sickle Cell Disease
For as long as I can remember, sickle cell disease has been a part of my life. It was something my mom always talked openly about—I was diagnosed with it before I was even born. As a child, I remember read more about Why I Chose to Do an Experimental Trial to Potentially Cure My Sickle Cell Disease
This Trial Shows Promise in Fighting Sickle Cell Disease
(HealthDay News) — There's more good news in the battle against sickle cell disease, with another trial finding CRISPR gene-editing therapy delivering impressive results for patients. “It’s encouraging that this gene-editing treatment continues to show promising efficacy for sickle cell patients,” read more about This Trial Shows Promise in Fighting Sickle Cell Disease