Some sites might also explore innovative strategies, including a new text message application that could help improve adherence to hydroxyurea, as well as neurocognitive (brain-related) screening and educational interventions to boost the wellbeing of patients. The researchers hope the study will lead to more effective evidence-based guidelines for the implementation of sickle cell care and ultimately help save lives in this at-risk population.
The following are SCDIC grant recipients:
- University of Illinois at Chicago, Chicago
- St. Jude Children’s Research Hospital, Memphis, Tennessee
- Washington University, St. Louis
- Georgia Regents University, Augusta
- Medical University of South Carolina, Charleston
- Icahn School of Medicine at Mount Sinai, New York City
- Duke University, Durham, North Carolina
- Children’s Hospital & Research Center at Oakland, Oakland, California
The SCDIC Data Coordinating Center is:
- Research Triangle Institute, Research Triangle Park, North Carolina
NHLBI is committed to sickle cell disease research, including closing the gaps that limit patient access to quality care. Dr. Gary H. Gibbons, director of NHLBI, believes that by continuing to tap into the vast world of scientific possibility, we will be able to witness a generation of children with sickle cell disease who live without fear of suffering a stroke – a stroke-free generation. NHLBI is excited to be working to turn that vision into reality. To learn more about sickle cell disease, visit NHLBI’s website.
George Mensah, M.D., is director of the Center for Translation Research and Implementation Science (CTRIS) at NHLBI.
W. Keith Hoots, M.D., is director of the Division of Blood Diseases and Resources at NHLBI.