difficulties you’ve noticed, and be open about how you’re feeling. Your input is essential for effective management of late-onset Pompe disease.
When to See Your Doctor
It’s important to see your doctor if you experience any of the following:
- Significant changes in your physical well-being, mobility, breathing, or fatigue levels.
- New or worsening symptoms, such as increased difficulty in chewing or swallowing, weakness in your tongue, or unexplained weight loss.
- Difficulty in performing everyday tasks or maintaining your usual level of activity.
- Changes in your management plan that you feel are not helping or could be improved.
Remember, early detection and management are key to living well with late-onset Pompe disease. Regular monitoring of your health and open communication with your healthcare provider are key to effectively managing late-onset Pompe disease. By staying aware of changes in your condition and discussing them with your healthcare team, you can work together to maintain your health and well-being.