That includes working with dedicated outreach professionals as well as organizations that are trusted by the local community and serve as hubs for it, such as churches, barber shops, schools or nonprofit groups.
“We’ve seen the impact it makes,” says Surani. “Korean Americans have noticeably low rates of breast cancer screening. Working with local Korean churches and getting their input on research protocols, we’ve been able to bring this lifesaving preventive service to more people.”
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Why community partners matter
Another success story involves the center’s work with Federally Qualified Health Centers (FQHCs). These community-based providers receive federal funding to offer primary care in underserved areas.
South Los Angeles has a higher incidence of late-stage lung cancer diagnosis than any other part of Los Angeles County. FQHCs now bring services to 40,000 individuals in the Black community in South L.A.
“By being present and working with L.A.’s diverse communities, we develop trusting relationships with the healthcare system and open the door for discussions about the importance of joining clinical trials,” says Surani.
An optimistic outlook on the future of clinical trials
Cedars-Sinai’s efforts are part of a nationwide movement to broaden clinical trial participation, a challenge long recognized by health agencies. In 1993, the National Institutes of Health (NIH) adopted a policy requiring all federal grants for clinical research to include women and marginalized individuals. The FDA later introduced policies to analyze the barriers for—and increase participation among—more diverse participants.
While the challenge persists, Surani and Dr. Haile are optimistic. They agree that there’s already been a positive change and that there’s more awareness than ever about the importance of diversity in clinical trials. And greater awareness means more progress is on the horizon.
By Cedars-Sinai