On our path to eradicate Black Breast Cancer, TOUCH, The Black Breast Cancer Alliance is excited to partner with the Morehouse School of Medicine and 2for2 Boobs, and powered by Ciitizen to launch #BlackDataMatters.
Black Breast Cancer is a different and distinct disease that deserves special attention and focus from the breast cancer ecosystem. The physiology of Black women has not been a significant consideration in clinical trial research. The average participation by Black Women in breast cancer clinical trials overall is less than 3 percent. We will not be able to change the devastating mortality numbers unless we better understand the physiology of Black Women.
And, we cannot do that until we have more Black women participating in clinical research. With low participation rates in clinical trials, Black women are missing access to newly emerging and often life-extending treatments that are not otherwise available. Moreover, trial data and resulting treatment protocols do not sufficiently account for the unique factors of the biology of Black breast cancer. The bottom line is that the breast cancer ecosystem has been unsuccessfully trying to solve for this issue for years. The time is NOW to figure out what has been missing and address it head on.
We are ecstatic about launching #BlackDataMatters, a program that puts patients in a position of power to directly change clinical research and the medical system that often fails black patients.
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FREE TO PATIENTS
This initiative will make it easy for people to be in control of their health data by collecting, digitizing and organizing your medical records through the Ciitizen platform. Because when we are empowered with our health data, we can drive change to eliminate
