Living with Pompe disease can be challenging, particularly for Black individuals who may face unique experiences and challenges. However, ... Read More
Rare Disease
The Day My Shoes Didn’t Fit: The Path to a Rare Disease Diagnosis
Several months before Kheesa realized that she needed to go to the doctor, she recalls one summer day that signaled what was to come. “I ... Read More
Inflammatory Breast Cancer Is Rare But Aggressive: Know the Signs
Inflammatory breast cancer is rare, but it’s aggressive, fast-growing and hard to detect early, so it’s important to know the warning ... Read More
Cancer Survivor Beats Rare Cancer: “I Was Given 18 Months to Live”
Most people spend their 20s exploring, finding themselves and figuring out what they want to do in life, but what happens when an unexpected ... Read More
MDS: A Rare Disease Of The Blood
Myelodysplastic syndromes (MDS) are a rare group of blood disorders that occur as a result of improper development of blood cells within the ... Read More
Retinitis Pigmentosa: Does This Rare Eye Condition Run In Your Family?
Do you know what retinitis pigmentosa (RP) is? If the answer is no, you’re not alone. An estimated 100,000 people in the U.S. are living ... Read More
MY STORY: A Rare Diagnosis Fueled My Passion To Give Others A Second Chance At Life
Shaunise Robinson is a mother, a third-grade teacher and a doctoral student at Texas A&M. Her entire life is centered on education. ... Read More
Symptoms of a Rare Breast Cancer That Many Black Women Could Miss
Inflammatory breast cancer (IBC) is rare and has some unusual warning signs that many women don't realize can signal the disease. This ... Read More
This Rare Disease Affects Black People More But You’ve Never Heard Of It
Though neuromyelitis optica spectrum disorder (NMOSD) was identified over a century ago, a lot of people still haven’t heard of it. Black ... Read More
