5 Steps to Building Your Multiple Sclerosis Support Network

Multiple sclerosis is challenging to control due to its many recognized and unknown factors. The signs and symptoms of this illness are wide-ranging. There is no way to predict how the illness will develop since no two people's experiences are identical.

Any problem may be solved with the help of an MS support group.

Cognitive and psychosocial [effects] may be equally as significant as the physical symptoms of MS, which are generally the first to come to mind.

A Comprehensive Medical Team

"Comprehensive MS treatment needs the skills of many healthcare professionals," says Hope Nearhood, NMSS director of MS information and resources, advocacy, and healthcare access. Your ideal team may contain these experts:

Neurologist
MS nurse
Primary care provider
Mental health providers, such as a psychologist, psychiatrists, and social worker
Rehabilitation therapists, such as occupational therapists, speech therapists, and physical therapists
Neuropsychologist
Wellness professionals, such as a nutritionist and personal trainer
Other healthcare specialists, such as an ophthalmologist, a gynecologist, and a urologist
Pharmacist

Comprehensive, coordinated care aims to alleviate symptoms and improve function, independence, health, and quality of life.

Ask your doctor for suggestions if you need a referral to a qualified MS specialist. The NMSS website may help locate nearby medical facilities and clinics.

Help At Home

People with multiple sclerosis should each take on a distinct group of responsibilities as part of a support network for those with the condition. With the assistance of a care partner, such as a spouse, friend, or member of the family, performing day-to-day responsibilities may be simplified. A care partner may assist with activities such as organizing appointments and errands, cleaning, transferring, and getting dressed.

Social & Emotional Support

You may get emotional support from your loved ones, but you may also find it helpful to join an MS support group. It helps to be among others who understand what you're going through. They have insights that most others don't.

There are several methods to meet MS patients.

Finding a local multiple sclerosis support group or meetup near you
Signing up for an MS volunteer opportunity or fundraiser
Networking through MS organizations
Joining groups on social media platforms like Facebook
Connecting with others here in the MS community

Depression is frequent in people with MS if they can't shake gloomy sensations and have lost interest in their favorite activities. Mental health difficulties might be a byproduct of the illness process, leading to physiological and psychosocial changes. Social and emotional support is crucial.

If you suspect depression, tell your doctor. You may also consider seeing a therapist.

Inform Yourself & Others

Access to reliable information may improve your chances of leading a happier and healthier life. A greater understanding of your MS may facilitate the support of others. Studies of MS and efforts to develop new treatments are still ongoing. You and your loved ones may be able to learn about the latest developments in MS research from reliable sources.

National Multiple Sclerosis Society
Multiple Sclerosis Association of America
Multiple Sclerosis Foundation
Multiple Sclerosis Coalition
Can Do Multiple Sclerosis

Know Where To Start

Starting early in your hunt for appropriate resources is always a good idea. Contact an MS Navigator from the National MS Society for assistance in locating appropriate services.

Having a network of people who understand living with MS is essential even when you don't feel sick. MS comes as a surprise. Having a support system in place may be comforting in times of need and relieve some of the stress that comes with managing a chronic health condition.