Even years after being diagnosed, I continued to suffer greatly into my youth. The stigma associated with this condition is intense and I always struggled to fit in as a child growing up. In high school I refused to go to gym because it meant exposing my arms and legs. Kids laughed, pointed and made fun of me. I had few friends and associates in school. I grew up in Virginia, a very warm climate at times and I never once wore shorts or short-sleeve shirts.
As an adult, the struggle has continued, but I’ve learned how to better manage my psoriasis by going on different types of medications. This battle has taken on a life of its own and I’ve made it my mission to help others with psoriasis and psoriatic arthritis to let patients know that you can come out fighting.
Over the years I have been an active advocate for psoriasis and psoriatic arthritis, speaking up and out about this disease. I attend town hall meetings, conferences and seminars to talk about this disease. I recently spoke at the FDA. I have a special interest in bridging the gap for psoriasis research in people with skin of color. The ultimate goal is to stop the stigma associated with this condition and find a cure.
I hope my story will touch others. My ups and my downs are what I talk about. I would like to share my story so that people can get more insight into who I am. I share my pains to inspire, not for pity. My triumphs are your triumphs in the hopes of touching the life of those also affected by this autoimmune disease.
Do you have an inspiring story to share? Email [email protected] with subject line “My Story”.