Endometriosis is a painful condition that affects about 15% of women and is a major cause of infertility. It causes tissue similar to that in the uterine lining to grow outside the womb, and hysterectomy is a frequent solution.
About 600,000 hysterectomies are performed every year in the United States, according to the U.S. Centers for Disease Control and Prevention.
The surgery involves removing the uterus, usually due to cancer diagnosis; to treat noncancerous growths called fibroids, and to treat uterine prolapse, in which pelvic floor muscles and ligaments fail to support the uterus.
Unfortunately, patients living with endometriosis are more likely to have complications during and after a hysterectomy, including the need for blood transfusions and increased risk of infection, new research indicates.
Patients with endometriosis are also more likely to have longer procedures and need other surgical procedures at the time of their hysterectomy. These included gastrointestinal surgeries, such as appendectomies or bowel resections, and surgeries affecting ovaries, fallopian tubes and pelvic floor ligaments.
Navigating hysterectomy & endometriosis
If you or a loved one considering a hysterectomy while dealing with endometriosis, the first step is to remember that you are not alone. Many women face this challenging situation, and while it can be complicated, there are ways to make the process smoother and less daunting.
As you weigh the pros and cons of getting a hysterectomy and whether or not is it the right form of treatment for you, here are some tips to help you navigate the intersection of endometriosis and a hysterectomy.
RELATED: Endometriosis: What All Black Women Need To Know
1. Educate Yourself: Knowledge is Power
The first step in dealing with any medical condition is to educate yourself. Learn as much as you can about endometriosis, hysterectomy, and their potential impact on each other. This knowledge will empower you to ask the right questions and make informed decisions.
2. Seek Out Specialists
It's essential to have a healthcare team that specializes in endometriosis and gynecological surgery. Seek out a surgeon who has experience in treating endometriosis and is well-versed in performing hysterectomies. A specialized surgeon can help minimize complications and improve your overall outcome.
3. Open and Honest Communication
Don't be afraid to have an open and honest conversation with your healthcare providers. Share your concerns, goals, and any specific symptoms you may be experiencing. This will help your medical team tailor their approach to your unique situation.
4. Explore Non-Surgical Options
In some cases, surgical intervention may not be the only solution. Discuss non-surgical treatments, such as hormonal therapy, with your healthcare provider. These options can help manage endometriosis symptoms and may reduce the need for surgery.
5. Keep a Symptom Journal
Maintain a detailed journal of your endometriosis symptoms. This can be incredibly useful in tracking changes and ensuring your healthcare providers have a clear understanding of your condition. It may also help them make better decisions about the timing and approach to the hysterectomy.
6. Emotional Support Matters
Dealing with endometriosis and a hysterectomy can be emotionally challenging. Seek emotional support from friends, family, support groups, or a mental health professional. It's okay to lean on others during this journey.
RELATED: Hysterectomy: What It Is, Side Effects & Recovery
7. Prepare for Recovery
Understand that recovery from a hysterectomy, especially when combined with endometriosis, can take time. Prepare your home for a comfortable recovery, enlist the help of friends or family, and follow your doctor's post-surgery instructions diligently.
8. Discuss Fertility Preservation
If preserving fertility is a concern, have a candid conversation with your healthcare provider before the hysterectomy. There may be options for preserving eggs or embryos if you wish to have children in the future.
9. Trust Your Instincts
You know your body better than anyone. If something doesn't feel right or if you have concerns about your treatment plan, don't hesitate to voice your doubts and seek a second opinion if necessary.
10. Be Patient with Yourself
Healing physically and emotionally after a hysterectomy can be a journey. Be patient with yourself, and don't rush the recovery process. Listen to your body and give yourself the time and care you deserve.
In conclusion, while endometriosis can indeed complicate a hysterectomy, there are steps you can take to navigate this challenging path successfully. By educating yourself, seeking out specialists, maintaining open communication, and taking care of your emotional well-being, you can improve your overall experience and achieve a smoother recovery. Remember, you're not alone, and there is support and hope along this journey.
