unexpected relapse. That’s why it’s so critical to constantly go to the doctor and continue to get tests and MRIs done to see how far along the MS is.
What is your immediate thought when you have a relapse?
My immediate thought is, “Oh goodness, I need my mom.” She is my lifeline/guardian when I’m in need/find myself having a relapse. Of course, my next line of thought is “I need to get ahold of my neurologist (neuro)” but that’s when she comes in and helps with the phone calls, taking me to urgent care or emergency, and whatever medication I need to take.
What is your medical plan when you have one?
Unfortunately, I don’t have a set medical plan since I left university.
However, my current plan is a fight or flight response (in a way). If I’m at work, I just tell my boss I have to leave and I immediately come home and figure out what medications I need to take or make my way to urgent care while calling my neurologist.
What helps you recover from a relapse?
REST! I know other patients with MS can testify to this too, but resting is so important for our bodies. For those who are undereducated about MS, our nervous system is constantly under attack by our immune system. So when we have a relapse, it brings us down and hard (like a slap back to reality kind of hard). So definitely rest is needed from a relapse recovery.
How do you take care of yourself?
It’s a working progress in my world and as of now, I’ve just been trying to journal, meditate more, work out, drink tea instead of coffee, and change my diet. Again, all working progress but all in the name of better health.
Do you have any advice for people who may be experiencing a relapse?
Please go to the doctor! Write down when you start experiencing symptoms, how long they’ve been lasting, and see if you can get in to talk to your neurologist.
If you feel like your neurologist/nurse is not listening or hearing any of your symptoms or dismissing them, please seek a second opinion and find someone that is willing to listen to you.
It always helps to have a doctor or a nurse that can listen to you, understand your symptoms and have a plan of action to help slow down the progression of your MS.
If you or someone you know may be experiencing symptoms of MS, please get an appointment to see a neurologist as soon as you can so that way you all can start the process of how to slow the progression of MS.
Hopefully, people with MS can identify with Nia’s story and loved ones and people who know and/or support someone with MS have gained more insight. I’d like to give thanks to Nia for sharing her story with us.