LOL: Lupus Out Loud
LOL?! Lupus Out Loud is a new online movement and video developed to encourage people with lupus to speak “out loud” about their symptoms. The movement was inspired by the results of a recent Roper survey that found over half (52 percent) of patients with lupus surveyed reported that they minimize their symptoms when speaking with their doctor.
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“Common lupus symptoms – including fatigue and pain – can be invisible to others, so many patients feel isolated and alone. Further, in an effort to not burden their family or physician, patients often underplay what they are actually experiencing,” said Susan Manzi, MD, MPH, Co-Director of the Lupus Center of Excellence and Chair of the Department of Medicine of West Penn Allegheny Health System.