Living with axial spondyloarthritis (axSpA), also known as ankylosing spondylitis, can be challenging. The chronic inflammatory rheumatic disease can cause pain, stiffness, and fatigue, and the fear of symptom progression can be overwhelming. However, there are steps you can take to manage your symptoms effectively and slow the progression of the disease. Here are five tips to help you on your journey:
1. Get Physical Activity
Regular exercise, including aerobic activities and strength training, is essential for managing axSpA.
Exercise can help reduce pain, stiffness, and inflammation, and improve mobility and overall health. Discuss with your doctor to determine the best exercise routine for you.
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2. Manage Stress
Stress can worsen inflammation and pain associated with axSpA.
Find stress-relief techniques that work for you, such as meditation, mindfulness, yoga, or spending time outdoors. If stress is overwhelming, consider seeking help from a mental health professional.
3. Strive for Restful Sleep
Poor sleep can increase inflammation and pain. Establish a bedtime routine, limit screen time before bed, and avoid caffeine late in the day. If sleep problems persist, talk to your doctor for further guidance.
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4. Consume a Whole Foods Diet
Eating a balanced diet rich in fruits, vegetables, fatty fish, whole grains, and healthy fats can help reduce inflammation and fatigue. Limiting red meat, sugar, and processed foods may also have a positive impact.
5. Take Your Medications
Adhering to your prescribed medications, including anti-inflammatories, DMARDs, and biologics, is crucial for managing symptoms and slowing disease progression.
Discuss any concerns or changes in symptoms with your healthcare team.
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How to Tell When It's Progressing and When to See a Doctor
Monitoring your condition for signs of progression is important for managing axSpA effectively. Here are some signs that your condition may be worsening:
Increased Pain and Stiffness: If you notice that your pain and stiffness are becoming more severe or frequent, it could be a sign that your condition is progressing.
Limited Mobility: Difficulty moving, especially in the morning or after periods of inactivity, may indicate disease progression.
Fatigue: Persistent fatigue that interferes with your daily activities could be a sign that your axSpA is worsening.
Changes in Posture: If you notice changes in your posture, such as a more pronounced stoop or curvature of the spine, it may indicate progression of the disease.
Eye Inflammation: AxSpA can also affect the eyes, causing inflammation known as uveitis. If you experience eye pain, redness, or sensitivity to light, seek medical attention promptly.
When to See a Doctor:
New or Worsening Symptoms: If you experience new or worsening symptoms, such as increased pain, stiffness, or fatigue, it's important to consult with your healthcare provider.
Difficulty Managing Symptoms: If your current treatment plan is no longer effective in managing your symptoms, talk to your doctor about adjusting your treatment.
Changes in Mobility: If you notice changes in your ability to move or perform daily activities, it's important to seek medical attention.
Eye Symptoms: If you experience symptoms of eye inflammation, such as eye pain, redness, or sensitivity to light, see an eye care professional promptly.
Emotional Distress: If you're feeling overwhelmed, anxious, or depressed due to your condition, seek support from a mental health professional.
By incorporating these tips into your daily routine, you can take control of your axSpA management and improve your quality of life. Remember to consult with your healthcare provider before making any significant changes to your treatment plan. Regular monitoring of your symptoms and prompt communication with your healthcare team can help you manage axSpA effectively and prevent further progression of the disease.
