What started as a Facebook group of chronic illness sufferers grew to over 100 people. From that group she realized there is a lot of information that people don’t know. Her goal in creating the nonprofit is to make sure patients are informed. “One of the things that some members didn’t know was about the arthritis,” states Melodie.
Melodie has dealt with the effects of Crohn’s disease since 2014. Her illness is not in remission, but manageable and, because of the consequences of the disease, she cannot work outside of the home. She is very candid about her condition and the effects it has, like the drains she has in her rectum because of constant bleeding. Because of the bleeding, she must bathe regularly to prevent clouting, which keeps her homebound.
During this pandemic, Melodie is always home, except to go to her or her husband’s doctor’s appointment. She has no immune system and is pregnant with her second child that is due in the summer. Because of her disease, she will have a C-section so as not to traumatize the drains in her rectum or the fistulas in her colon.
Melodie understands how important being healthy is to her survival. Having as strong an immune system as possible, getting her rest, exercise and her relationship with God are the keys to her successful existence with an autoimmune disease.
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