Welch said she has formed an indescribable bond with Dr. Tropez-Sims, who makes house calls to treat Darian, saving his family the inconvenience and expense of calling an ambulance to have him transported to medical appointments.
Dr. Tropez-Sims said Welch is an extraordinary example of a patient advocate. She said Welch meticulously takes care of her son and was on the forefront of trying to find his diagnosis.
In fact, Dr. Tropez-Sims said, it was Welch who first brought the NIH’s Undiagnosed Diseases Program to her attention. Dr. Tropez-Sims advises parents who may be in a similar situation not to give up until you know what’s going on with your child.
“Sometimes it’s hard to know how far you should go or when you should stop, but it’s a personal decision,” Dr. Tropez-Sims said. “When you are told that they don’t know what’s wrong with your child, try to seek all avenues until you get your answers.”
Dr. Tropez-Sims said Welch has been a great mom, holding a birthday party for Darian each year and inviting other children with developmental disorders.
Today Darian’s final celebration will be a party with everyone dressed in all white. Darian will have a cake and balloons. He will be surrounded by loved ones including his mother; his father, Darrell Jones; his grandmother, Deborah Welch; and his pediatrician, Dr. Tropez-Sims. His mother will let him know that it is his birthday and it’s time to say goodbye.
“I’ll let him know he’s loved and I’ve done all I can do. He’s going to a place where mommy is not going to be. He’s going to see his Nana [great-grandma] and Nana is going to watch him until I get there. I’m at peace. I know that Darian is going to a better place and he doesn’t have to be like he is now.”
BlackDoctor.org speaks with Dr. Tropez-Sims about caring for your newborn. Check out the video below!
Parenting a child for the new, confused & unsure with Dr Sims
Posted by BlackDoctor.org on Tuesday, March 21, 2017