Ashley Valentine, MRes, Co-Founder and President of Sick Cells, updates us on policy and explains why it’s important to advocate for your health as a sickle cell patient and how to go about it.
Sickle Cell Warriors: Advocate For YOUR Health With These Tips (Video)
The Latest In Sickle Cell Disease
How Does Age Affect Sickle Cell?
Growing up with sickle cell disease may seem like a never-ending battle. It can get rough, from constant blood transfusions to the overwhelming fatigue you feel daily. But, by the end of this article, you will have an idea of read more about How Does Age Affect Sickle Cell?
Faith Over Fear: How an Infant’s Family Treated Her Sickle Cell Disease
As a newborn, Savannah Spio was diagnosed with sickle cell disease, a condition that requires lifelong care. Her parents, Lillian and Justin, sought out treatment for Savannah at Cedars-Sinai. In her first few weeks of motherhood, Lillian Spio received disturbing read more about Faith Over Fear: How an Infant’s Family Treated Her Sickle Cell Disease
Black Women With SCD Have a Higher Risk of Pregnancy-Related Complications, Here’s Why…
Pregnancy brings physical and psychological changes to the body. From my perspective of being a mother, my main concern while pregnant was, am I doing everything correctly to keep my baby and myself healthy and safe. For a Black woman read more about Black Women With SCD Have a Higher Risk of Pregnancy-Related Complications, Here’s Why…
9 Things Blacks Need to Know About Donating Blood
In this country, over 100,000 people have sickle cell disease – the great majority of whom are African American or of African descent. These patients may require frequent blood transfusions throughout their lifetime. Unfortunately, many people are hesitant to donate read more about 9 Things Blacks Need to Know About Donating Blood
6 SCD Stereotypes the Black Community Needs to Know
An inherited blood disorder that can cause serious problems, Sickle Cell Disease unfortunately affects Black Americans disproportionately. And that’s where the problems begin. Because if you didn’t know, many stereotypes about Black sufferers of this disease are floating around, and read more about 6 SCD Stereotypes the Black Community Needs to Know
How Does Gene Therapy for Sickle Cell Work? 5 Things You Need to Know
Sickle cell disease (SCD) is a genetic disorder affecting hemoglobin, the protein in red blood cells that carries oxygen. In SCD, the red blood cells become misshapen (sickle-shaped), leading to blockages in blood vessels, chronic pain, and organ damage. Until read more about How Does Gene Therapy for Sickle Cell Work? 5 Things You Need to Know